Mourning the Celebration

A woman contacted me recently, her unborn child was diagnosed with a rare and lethal form of dwarfism.

A friend of mine had a stroke. He is a pro soccer player. He has an undiagnosed form of dwarfism.

My niece’s friend was just told by her parents that she has leukemia. They wanted to spare her until she was very ill.  She is 16.

My own little sister died at 4 days old.

My neighbors welcomed a new baby. He has Down Syndrome.

Each of these lives touch so many any others in ways we will never know. A smile, interacting with a stranger, or just walking down the street. Lives will be impacted.


They are to be celebrated. They are to be mourned. If you are a parent of a child who was diagnosed with a serious condition, marvel at the beauty they hold; and in quiet times, take time to mourn. There is a loss beyond measure and mourning is a way of dealing with it. But so is celebration. From now on, the two will go hand in hand for the rest of your life.

There are diseases and conditions which take the lives of young ones. There are also diseases and conditions that alter lives, putting them out of the norm. This is fact. But remember you were given this child because you are the only one who can care for him or her in a way that magnifies their gifts and gives them a wonderful life. Your love is unique.

Celebrate. Mourn. Be thankful.

Be thankful for having been granted the very rare opportunity to parent this child.  This child will impact the lives of every one who passes by them in a very special way.

If you are the one who has been diagnosed with a serious condition, also take time to mourn. You have lost something. But also celebrate your unique life. You will impact others..what kind of mark do you want to leave?

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